Un’associazione che si occupa delle malattie genetiche rare esiste anche in Ticino. L’organizzazione è stata presentata questa mattina (lunedì) a Bellinzona. Con il sostegno di Telethon, hanno spiegato i promotori, si cercherà di far fronte in modo rapido ed efficace alle necessità degli ammalati e delle loro famiglie.
Nella Svizzera italiana le persone affette da malattie neuromuscolari genetiche rare o anche solo genetiche rare sono 600. In genere si tratta di situazioni gravi o molto gravi, croniche e spesso degenarative.
Monica Duca-Widmer ha detto alle Cronache della Svizzera italiana che è importante "rendere accettabile la qualità di vita. Il supporto è fondamentale, ha ricordato.
Red. MM/CSI/Il Quotidiano
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